During the past years, first instruments for the evaluation of contents of the comprehensive approach of palliative care have been developed internationally. The Anglo-American version of the QoDD assesses family caregivers’ and professionals’ experiences from the dying phase and circumstances of death. In collaboration with the University Hospital Mainz the QoDD questionnaire was translated into German and validated in terms of its psychometric properties. For this purpose, family caregivers of patients who died on the palliative care wards in Erlangen and Mainz and health professionals were interviewed in a personal interview on the basis of the QoDD. The questionnaire is now ready for standard use in clinical practice and end-of-life care research.
Scientific Staff Erlangen: Dr. phil. Maria Heckel, Prof. Dr. med. Christoph Ostgathe;
Scientific Staff: Mainz: Sonja Bussmann, Prof. Dr. med. Martin Weber
QoDD-D-Ang Qualitiy of Dying and Death Questionnaire in der Version für Angehörige (Deutsch)
Manual zu QoDD-D-Ang
QoDD-D-MA Qualitiy of Dying and Death Questionnaire in der Version für Mitarbeiter (Deutsch)
Manual zu QoDD-D-MA
The study was funded by the German Cancer Aid (Deutsche Krebshilfe e.V.). Förderkennzeichen 110026/110027 (Projektlaufzeit: 15.06.12-30.11.2014)
Heckel M, Bussmann S, Stiel S, Ostgathe C, Weber M. Validation of the German Version of the Quality of Dying and Death Questionnaire for Health Professionals. The American journal of hospice & palliative care. 2016;33(8):760-9.
Stiel S, Heckel M, Bussmann S, Weber M, Ostgathe C. End-of-life care research with bereaved informal caregivers--analysis of recruitment strategy and participation rate from a multi-centre validation study. BMC palliative care. 2015;14:21.
Heckel M, Bussmann S, Stiel S, Weber M, Ostgathe C. Validation of the German Version of the Quality of Dying and Death Questionnaire for Informal Caregivers (QODD-D-Ang). J Pain Symptom Manage. 2015;50(3):402-13.